I Some important information for new prostate cancer patients
A Primer on Prostate Cancer Parts I & II-Written and compiled by Donna Pogliano Web Link:
http://www.phoenix5.org/Basics/DPprimer0918.html
Explanation of types of treatment-from the American Cancer Society
http://www.cancer.org/docroot/ETO/ETO_1.asp
Grading of prostate cancer-Explanation of the Gleason Grades
http://www.phoenix5.org/grading.html
Partin Tables-Are used to do a statistical estimate as to whether the cancer is confined within the prostate, is outside the prostate, in the seminal vesicles or in the lymph nodes. These tables are based on 2001 data from the John Hopkins Brady Cancer Institute.
http://urology.jhu.edu/Partin_tables/index.html
Phoenix5 Prostate Cancer Glossary-compiled by Robert Young
http://www.phoenix5.org/glossary/glossary.html
Prostate Cancer Infolink-These editorials are something that should be of interest to those in the prostate cancer community. You may want to read some of the other blog entries while you are at this blog.
http://prostatecancerinfolink.net/2008/09/17/three-important-editorials/
Prostate Pointer's New Patient Guide-Prostate Pointer's excellent guide designed to assist new patients in answering the "What do I do now?" question after being notified that they have PCa.
http://www.prostatepointers.org/newlydx.html
Some famous people-with prostate cancer.
http://menshealth.about.com/cs/prostatehealth/a/prostate_cancer.htm
Staging of prostate cancer-Explanation of T Stages. Web Link
http://www.phoenix5.org/staging.html
Univ. of Pittsburgh Patients-
http://www.upmccancercenters.com/prostate/ptinterviews.html
Welcome Newcomer-Ron Koster's new PCa patient email message. Appears frequently on the Seedpods mail list. Hint: both user name and password are pp.
http://www.prostatepointers.org/pods/2003/Jun/20/0005.html
II Internet sites with lots of PCa information
Andy Grove's-first person Fortune Magazine article about his treatment decisions.
http://www.phoenix5.org/articles/Fortune96Grove.html
Back copies-of their "PCRI Insights" newsletter
http://www.prostate-cancer.org/resource/insights.html
Dr. Strum's thoughts-on how to properly stage PCa. Suggestion is to concentrate on determination of organ confined or non-organ confined disease before selecting a treatment that may fail if the disease is not organ confined.
http://www.prostate-cancer.org/education/staging/correct.html
Excerpts from books about prostate cancer-from Phoenix5.
http://www.phoenix5.org/books/books.html
Medline Plus-he National Institutes of Health site dedicated to Prostate Cancer.
http://www.nlm.nih.gov/medlineplus/prostatecancer.html
Memorial Sloan Kettering's Prostate Cancer Treatment Decision Guide-A Prostate Cancer Decision Nonogram developed by MSK to assist patients, in consultation with their physicians, to decide among the major treatment choices for Prostate Cancer.
http://www.mskcc.org/mskcc/html/10088.cfm
On-line copy-of the CapCure monograph on Nutrition and Prostate Cancer (PDF Document)
http://www.kintera.org/AccountTempFiles/cf/{B03F0A9B-1CFE-45E8-8A8D-EAA620CC252F}/CAPCURE_MONOGRAPH.PDF
PAACT-Patient Advocates for Advanced Cancer Treatments.
http://www.paactusa.org
Patients Helping Patients-Don Cooley's site devoted to Prostate Cancer. More information here than any other single place on the Internet.
http://www.prostate-help.org
PC-REF-With PC-REF, you will become an active partner in your treatment decisions, not merely an informed patient.
http://www.pcref.org
PCRI-The not for profit Prostate Cancer Research Institute providing excellent advice on-line and through their newsletters.
http://www.prostate-cancer.org
Phoenix 5-Robert Young's extensive site devoted to Prostate Cancer. This site is very extensive and easier to use than Don Cooley's site above
http://www.phoenix5.org
Prostate Calculator-provides an automated tool to calculate the probabilities of cancer spreading outside the prostate, to the lymph nodes and recurrence after surgery. This is an experiment in using data like the Partin tables together with neural networks to assist in the decision making process.
http://www.prostatecalculator.org
Prostate Cancer Foundation-Was CapCure founded by Mike Milken.
http://www.prostatecancerfoundation.org
Prostate Cancer Profiler- treatment decision support tools. Assistance in understanding treatment options and potential side effects.
http://www.cancerfacts.com/
Prostate Forum-Dr.Charles E. (Snuffy) Myers' Prostate cancer newsletter. Sample issue and lots of good information here.
http://www.prostateforum.com
PSA Rising-Jacquie Strax's online prostate cancer magazine
http://psa-rising.com/index.html
Women Against Prostate Cancer-Resource Center for Intimacy Issues Women Against Prostate Cancer places a high priority on addressing sex and intimacy questions related to prostate cancer. The questions and fact sheet found on the link below are a first step in addressing some of the most frequently asked questions that we have seen.
http://womenagainstprostatecancer.org/intimacy.php
III Links to well known prostate cancer centers/universities
Cancer Institute of New Jersey-The preeminent New Jersey State Government sponsored Cancer Research Institute.
http://www.cinj.org
Dean and Betty Gallo Prostate Cancer Center-The state's only specialized prostate health resource at a National Cancer Institute designated cancer center
http://www.menshealthnetwork.org/gallo/gallocenter.html
Fox Chase Cancer Center-Research conducted by scientists and physicians at Fox Chase for nearly seven decades has led to groundbreaking discoveries.
http://www.fccc.edu
Johns Hopkins Brady Urological Institute-Home of Dr's. Patrick Walsh and Alan Partin known for their surgical skills.
http://urology.jhu.edu
Mayo Clinic-One of the world's foremost research hospitals. It provides superior cancer treatment in the mid-west
http://www.mayo.edu
Memorial Sloan-Kettering Cancer Center-stablished in 1884, is the world's oldest and largest private institution devoted to prevention, patient care, research, and education in cancer.
http://www.mskcc.org
Morristown Memorial Hospital and the Peter B. Doherty Men's Cancer Program-he Peter B. Doherty Men's Cancer Program is an integral part of prostate cancer treatment at the hospital's Carol G. Simon Cancer Center.
http://www.atlantichealth.org/cons/hospitals/at_MMH/key_services/oncology_at_MMH.html
University of Pennsylvania's OncoLink-cancer pages
http://www.oncolink.upenn.edu
University of Texas MD Anderson Cancer Center-In the last 60 years, M. D. Anderson has built a worldwide reputation for excellence in cancer patient care, research, education and prevention.
http://www.mdanderson.org/diseases/prostate
IV Links to some well known prostate cancer practitioners
Seeds-Dr. John Blasko - Seattle Prostate Institute in Seattle, WA.
http://www.seattleprostateinst.com
Seeds-Dr. Michael Dattoli - Dattoli Cancer Center in Sarasota, FL.
http://www.dattoli.com
Surgery-Dr. Peter Scardino at Sloan-Kettering.
http://www.prostateaction.org/research/peter_scardino.html
Surgery-Dr. William J. Catalona, Washington University Medical Center in St. Louis, Missouri and Medical Director of the Urological Research Foundation.
http://www.drcatalona.com/
Temporary (HDR) Seeds-Dr Douglas Kelly - Cancer Treatment Centers of America in Tulsa, OK.
http://www.brachytherapy.com/prost-brachy.html
V Links to Internet Mail Lists
CHB-Offers discussion for those interested in hormonal blockade. Includes: orchiectomy, medical hormonal blockade [lupron, flutamide, proscar, etc]. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/chb
EBRT-Offers discussion and support for patients interested in any form of radiation therapy. To subscribe, go to:
http://www.prostatepointers.org/mailman/listinfo/ebrt
HAH-Humor And Healing (HAH) is a humor list for the online PCa community. Subscribe on the Internet at:
http://www.prostatepointers.org/mailman/listinfo/hah
PCAI-Prostate Cancer and Intimacy is an unmoderated mailing list for frank and open discussion of the sexual issues surrounding PCa. Subscribe at
http://www.prostatepointers.org/mailman/listinfo/pcai
PCAN-PCAN attempts to focus PCa activist discussion into a coherent voice. Subscribe on the Internet at:
http://www.prostatepointers.org/mailman/listinfo/pcan
PPML- Prostate Problems Mailing List. A forum that discusses men's Prostate Cancer. The intent is to help patients and their loved ones understand their illness and make informed treatment decisions. Subscribe on the Internet at
http://www.acor.org/prostate.html
Promise-A mailing list for those grieving a loss. Also offers help and support to those with a spouse, partner, or family member in the last stages of life. Subscribe at
http://www.prostatepointers.org/mailman/listinfo/promise
RP-A mailing list dedicated to the needs and concerns of radical prostatectomy patients. Focuses on those who have already had an RP or have selected RP as their treatment. To subscribe,
http://www.prostatepointers.org/mailman/listinfo/rp
Spirit-Spirit is a mailing list for those who want to share spiritual support as they live with prostate cancer. To subscribe
http://www.prostatepointers.org/mailman/listinfo/spirit
WW-Discussion and support for patients interested in Watchful Waiting as a strategy for the management of prostate cancer.
http://www.prostatepointers.org/mailman/listinfo/ww
VI Links to On-line Support Sites
An RP Survival Handbook-A collection of experiences by people treated using Radical Prostatectomy
http://www.phoenix5.org/Basics/treatsides/vossRP/vossRP1.html
Cancer411.org-A complete and searchable list of new cancer treatments and clinical trials, world-wide, for all kinds of Cancers, including Prostate Cancer
http://www.Cancer411.org
Cancernews.com-A site with current prostate cancer news and extensive links.
http://www.cancernews.com
HealingWell.com-Prostate Cancer Resource Center. Contains articles, information on community forums, chats and other PCa resources
http://www.healingwell.com/prostatecancer
Hormone Refractory Prostate Cancer-This web site has been developed and is being maintained as a service to men, women, and their caregivers who are fighting hormone-refractory prostate cancer (hrpca).
http://www.hrpca.org/index.html
Joe Armon's High Dose Rate (HDR) temporary brachytherapy links-Information on HDR and links to HDR centers.
http://www.prostatepointers.org/SeedPods/hdrlinks.html
Malecare-A multiple location New York City prostate cancer support group. meets every Monday and Tuesday night. Lectures held separately, twice per month.
http://www.malecare.com
Prostate Pointers-A rich source of links and information on PCa.
http://www.prostatepointers.org
ProstateInfo.com-AstraZeneca's (Zoladex, Casodex) information site for Prostate Cancer Patients.
http://www.prostateinfo.com
PubMed-Gets you abstracts of the most recent scientific papers
http://www.ncbi.nlm.nih.gov/PubMed
Somerset County Cancer Coalition (SCCC)-EARLY DETECTION SAVES LIVES - The Somerset County Cancer Coalition (SCCC), established in 2004, is an outcome of the statewide initiative, New Jersey Cancer Control Plan, and was given the charge to examine and collect county level data on cancer incidence.
http://www.co.somerset.nj.us/Health/ccc_index.htm
The Doctors Guide-The latest Prostate Cancer news.
http://www.docguide.com/news/content.nsf/PatientResAllCateg/Prostate Cancer?OpenDocument
The Hypertext Guide to Prostate Cancer-Created by a patient, who spent a lot of time reading, asking questions, searching the internet and learning some things the hard way.
http://www.hypertext.org
US TOO-Web site for the sponsor of many of our Prostate Cancer support groups
http://www.ustoo.com
US Too Hot Sheets-Monthly Hot Sheets devoted to Prostate Cancer by US Too.
http://www.ustoo.com/Hot_Sheets.asp
Virgil's Prostate On-Line-A Guide to Fighting Prostate Cancer by another survivor.
http://www.prostate-online.com